Infusion goes better if patients and caregivers plan ahead. Here are some tips to help ensure the smoothest possible infusion day.
Between the actual infusion and the travel time, infusions can take up most of a day. To make it easier on your work or school schedule, you can try these ideas:
- Plan with your teacher or boss to do a half‐day on your infusion day
- Ask for work you can do during the infusion so you don’t miss out
- Talk to your infusion center to see if weekend or evening appointments are available
Also, keep in mind that lots of people have scheduling conflicts from jobs, childcare, and other responsibilities. You’re not the only one. Most teachers or bosses are used to working with scheduling requests.
You’ll need to rest for about 4 hours during the infusion. So plan something fun or useful to do each week. Here are some ideas:
- Call friends you haven’t talked to in a while
- Do homework
- Play a video game
- Learn a language on DVD
- Watch your favorite TV shows on DVD
- Write in a journal or blog
Stay with your treatment
Every infusion helps you get rid of more GAG. On the other hand, every time you miss an appointment, GAG builds up. So it is important to go to every appointment. If you miss one for some reason, schedule the next one promptly.Learn more about the benefits of consistent NAGLAZYME therapy