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| Support groups |
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| Contact these organizations for information and support group meetings in your area. |
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| Advocacy and Support Organizations |
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- National MPS Society, Inc.
www.mpssociety.org
Phone: 207-947-1445
- Little People of America, Inc.
www.lpaonline.org
Phone: 503-846-1562
- Little People’s Research Fund
www.lprf.org
Phone: 800-232-5773
- National Organization for Rare Disorders (NORD)
www.rarediseases.org
Phone: 203-744-0100
- Genetic and Rare Diseases (GARD) Information
Toll-free: 888-205-2311 TDD for hearing impaired: 888-205-3223 Email: GARDinfo@nih.gov
- BioMarin Patient and Physician Program (BPPS)
Toll free: 866-906-6100 Email: bpps@bmrn.com
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