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About MPS VI
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Support groups
Contact these organizations for information and support group meetings in your area.
Advocacy and Support Organizations
  • National MPS Society, Inc.
    www.mpssociety.org
    Phone: 207-947-1445
  • Little People of America, Inc.
    www.lpaonline.org
    Phone: 503-846-1562
  • Little People’s Research Fund
    www.lprf.org
    Phone: 800-232-5773
  • National Organization for Rare Disorders (NORD)
    www.rarediseases.org
    Phone: 203-744-0100
  • Genetic and Rare Diseases (GARD) Information
    Toll-free: 888-205-2311
    TDD for hearing impaired: 888-205-3223
    Email: GARDinfo@nih.gov
  • BioMarin Patient and Physician Program (BPPS)
    Toll free: 866-906-6100
    Email: bpps@bmrn.com
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