More Information For more information about MPS VI contact: Visit www.mpsvi.com, BioMarin’s educational website serving MPS VI patients, families, and healthcare providers BioMarin Pharmaceutical Inc. 105 Digital Drive Novato, CA 94949 www.bmrn.com Phone: 415-506-6700 Information phone line for physicians and patients: 415-506-6100 Toll-free (in USA) information phone line for physicians and patients: 866-906-6100 Fax: 415-382-7889 Food and Drug Administration (FDA) Office of Orphan Product Development 5600 Fishers Lane HF-35, Room 8-73 Rockville, MD 20857 USA www.fda.gov/orphan/ Phone: 301-827-3666 Toll-free in USA: 800-300-7469 Lysosomal Disease Center University of Pittsburgh E 1651 Biomedical Science Tower—Human Genetics Dept. Pittsburgh, PA 15213 USA Toll-free in USA: 800-334-7980 www.hgen.pitt.edu/research/index.php Email: erin.orourke@hgen.pitt.edu and nadene.henderson@hgen.pitt.edu Office of Rare Diseases National Institutes of Health (NIH) 6100 Executive Blvd Room 3B01, MSC 7518 Bethesda, MD 20892-7518 USA rarediseases.info.nih.gov/ Email: ord@od.nih.gov Department Head: Steven Groft, Pharm.D. Phone: 301-402-4336 Fax: 301-402-0420 Genetic and Rare Diseases (GARD) Information Toll-free: 888-205-2311 or 888-205-3223 (TTY) Email: GARDinfo@nih.gov National MPS Society P.O. Box 736 Bangor, ME 04402-0736 Phone: 207-947-1445 Fax: 207-990-3074 Email: info@mpssociety.org Metabolic Disease Centers in the US If you want your center taken off the list or if you would like to be added to the list, please contact us. Download this list in PDF